A Literal Adventure.

Published 19/04/2012 by Amy

About three weeks ago, I stepped into my local library, something I hadn’t done for several years, the reason? There was a book I really wanted to read and it wasn’t currently available as an eBook and also I don’t spend £30 on an audio cd that I have no idea if I’ll enjoy the story or if it’s ruined by a poor choice narrator. Anywho.. my only option was to borrow the paperback version from my local library, which is so poorly stocked it had to actually order it in from another library and mum offered to read it to me in the evenings. A week after booking it I got to pick it up and my library is now offering a self serve and return station, kind of similar to the self serve stations at supermarkets, except these don’t talk or announce anything, or they may do but no one mentioned it when we needed help to scan my card barcode in to borrow the said book. We eventually got it sorted and took it home, the print was really tiny so I had no chance, in fact it looked just like blank pages to me. It must have been really tiny because even mum had to put on her glasses, which is a very rare occurrence. We didn’t even read the first page the entire three weeks of borrowed time.
Our fall back plan was to scan the paperback onto the computer and try these free ePub conversion sites that apparently let you upload pdf’s and convert them into various ebook formats such as .mobi for Kindle. Mum was already half way through doing another book for me so we didn’t get around to doing this one, we tried two different sites and it didn’t work, just used up lots of internet data and accomplished nothing. So, I guess I’m stuck with either paying out lots of money I don’t actually have to get my hands on an audio book I may or may not like, or I just don’t read the books I want to read while everyone else gets to read them and review them. Nice.

I’d like to find out if the self serve and returns station does have audio capacity, I know in America they have talking cash machines, which they are trying to do here, so why not library stations too? However, a talking book station still wouldn’t help me and my guide dog actually exit the library through the glass doors that you have to wave or press a button at to go through, although I imagine Ellie and myself are very comical in these situations, it does little for my self confidence and wanting to gain further independence. One step forward two steps back.

Also following some awesome new blindies on Twitter and this popped up today, I think it’s very interesting, so check it out.

Go for it.

Published 17/04/2012 by Amy

2012, I decided to push myself out of my limits, it’s April and I’ve barely tapped the bubble let alone pushed through it. After listening to a documentary on Youtube about Ben Underwood, who was blind but saw with sound, eco location. He would click his tongue and detect if anything was in front of him by the echos that bounced back, he was totally blind, yet didn’t use a cane or a dog, relied totally on his self taught eco location. I’d heard of this technique before, another American in another documentary, but the other guy I knew also used a white cane.

Ben has since died from cancer, which at the age of 2 caused him to have both eyes operated on and removed to save his life, but his memory and inspiration lives on. He didn’t consider himself handicapped in anyway, he played basketball, skated and rode his bike up and down the street. I’ve always wanted to be able to skateboard, nothing fancy, no ramps or rails, just stay on the board long enough to do a flip trick or something for my own enjoyment but I’ve let my anxiety take over and slow me down rather than hitting it head on and trusting myself in a familiar environment.

After the documentary I went back to watching skateboarding tutorial vidoes and I just went for it, I googled the best beginner boards, safety gear and helmets, and dove in. Ordering a helmet was the trickest thing because of my microcephaly I have smaller than average head circumference which means lots and lots of padding even in the smallest hat. I didn’t go for anythign flashy or expensive, I don’t think I tipped over £30-40 for a board, wrist guards and a helmet. I was going to upload a picture of my gear with this post, but unfortunately only the helmet and wrist guards have arrived, still waiting on the ‘monster’ skateboard.

So, instead I’ll leave you with some inspiration from the late Ben Underwood.

 

First Disability Network Meeting & Thoughts.

Published 16/04/2012 by Amy

Today I was invited along to a local Disability Network meeting. I hadn’t really heard or were aware of them so it was nice to go along and see what kind of things they discuss and what, if anything, I can get involved with to help out.

I was expecting a few more actual disabled people to be in the meeting, as it’s for their benefit and feedback on how we as a community can help and get things noticed by the Councils.

There were three disabled people myself included, I being the only blind person. The rest were made up of different agencies and charities.

The MP representative who I’m told usually attends these meetings, didn’t turn up to today. We were hoping to see him/her to address and stress once again, that it’s all well and good deeming to reply to the people who give you your power, but if you disrespect us by reply in an unaccessible format, you aren’t doing your job and clearly aren’t worthy of it.

However, despite that set back which I’m sure will be readdressed in two months time if they actually turn up! I did learn some valuable information regarding local services which I’ll happily share on here in the navigation on your right.

I’m very much interested in the See Hear Center provided by Living Options, which is hoping to raise some money for a bus scheme so it can go on the road and promote the service, at the moment it’s based in North Devon and they run a ‘Try before you buy’ service with aids for those with Visual Impairments and Deaf Impairments. Which is a fantastic idea because a lot of the aids and adaptations, particularly electronics, can be very expensive even though they can mean so much and change the world for a VI/Deaf individual. It’s also great news that they want to cover the whole of Devon, opening it up to more people and those who can’t trek all the way up to Barnstaple. Second hand equipment definitely appeals to me so I really want to check this place out.

The Living Options website is jam packed full of information so if you are disabled or live with someone who is disabled and you live in Devon it’s definitely worth checking out if you’ve not done so already.  

Delays… Sigh

Published 14/04/2012 by Amy

Hellooooo

I am back at last! I haven’t intentionally been on hiatus, too many things just conspired against me to blog on here regularly.

My internet connection was down for about a week unannounced so we took the opportunity to change providers and it’s all back up now and very happy with it.

I’ve also been working hard on my new book blog RavenTurneDove so go check it out, I’m focusing on Audio Books and eBooks, I’ve had some very sweet and thoughtful comments so far so thank you I really do appreciate it :)
I have a handful of book reviews up there now and filing them for easy reference as I go along, I’m halfway through my April books the long weekend helped with no internet distractions! I’m about to finish Fever by Lauren DeStefano and then I’ll get started on Miss Peregrine’s Home for Peculiar Children by Ransom Riggs. I debated whether to get the audio download from Audible as I have some credits to use up, but after reading the reviews with the same thing coming up ‘interesting story ruined by narrator’ I thought I’d get the eBook for £5 on Amazon instead, so I’ll download that over the weekend. I do question why an American was chosen to narrate a book that features Welsh/English and Polish accents. This is something that crops up again and again, we need more British English audio book narrators. PERIOD.

I’ve been having a techy week. My dad was impressed with my iPhone and how I’m getting on with it that he thought it might help him also, he doesn’t need VO but he’s really enjoying Siri :) I’ve been going through things like setting up his gmail and showing him all he needs to know, he’s downloading apps now, not Angry Birds though. I’ve also been talking to a friend on Twitter who’s VI and is after her first Apple Mac computer, I’ve been helping her find one, meanwhile I’ve also had my eye on a second hand MacBook Pro (2010) because our beloved MacBook (2006) is getting a bit slow and old, and even if I shell out for the extra RAM and max it out it’s still only 2GB, wheras I can max out a MacBook Pro with 4GB and have OS X Lion, which is the same as my Mac Mini and I know my way around – I’m also planning on maxing my Mini out to 8GB as it’s currently on 4GB.

Exciting news, I’m joining the local Disability Network group and my first meeting is on Monday, I’m really into campaigning so it will be fun to meet others and be social within the disabled community, it’s not just VI.
The lady I was talking to, who invited me was very interested in the letter I received from my MP regarding the DLA/PIP and how it was totally unaccessible so I’m going to bring it along because apparently the MP in question always sends a representative to the meetings, so we’ll wave it under his/her nose and say, this isn’t good enough, try again, better luck next time.

I think I’ve caught you up for now, need to finish my book and warm up, it’s freezing. We’ve had rain showers and thunder today. Awesome.

ALSO POTTERMORE IS FINALLY OPEN.
Ps. You can’t choose your own username and you have to wait for 2 emails, one to register and another one (I’m still waiting for) to let you actually in and explore the world.

So What’s It Like, The Big Blue?

Published 29/03/2012 by Amy

Big and er, Blue!

It was a nice warm sunny day so as we are on holiday this week, we decided to drive down to Slapton Sands/Slapton Lea for a day out by the beach. It’s one of our favourite places to go and one of my all time favourite books ‘The Amazing Story of Adolphus Tips’ by the awesome Michael Morpurgo is based there so I always get an extra kick out of it. I usually keep a copy of the book in my bag so it’s with me wherever I go – I tend to do that with the handful of favourite books, is that crazy?

Anyway… we left home around lunch time so that we could have lunch there, it was nice, we had a picnic and walked around the village, Ellie even went paddling in the sea, she likes the water once she’s gotten used to it, not to keen on crashing waves coming towards her and the pebbles moving under her when she tried to run spooked her out a bit, but she has been on beaches before but I’m guessing Guide Dogs don’t do much training on beaches.

I usually get car sick but it wasn’t to bad on the way there, I sat in the back with Ellie and started reading Harry Potter and The Chamber of Secrets, I downloaded the ebook for my Kindle from Pottermore.com this morning, I’m on chapter 6 so far, last night I downloaded Harry Potter and The Philosopher’s Stone, yes the British version I have no idea where the Sourcerer’s Stone came from, you yanks why’d you gotta change everything? I managed to get through that in an evening but I enjoyed it. I love it when you come across a book that you smile or laugh your way through and it’s never boring, even when you’ve read the book several times and watched the movie even more times. You still want to know what happens and you can imagine is to clearly, Jo Rowling is a genius. I couldn’t read on the way back because the journey was a lot rougher in the country lanes and dad isn’t the best driver, it’s all stop or all go, so when we got home I had to down a cup of tea, a couple of crackers and lie down for awhile, but I feel much better now thank goodness! I hate when I feel like that, I never know how long it’s going to last and if it will turn into a full blown migraine that’s going to take over and floor me.

I decided not to take my chunky camera and try out my new iPhone 4s camera instead I’m pretty happy and impressed with both the picture and video/sound quality, I even had signal in the village – amazing.

Hope you enjoyed the sunshine!!!

A Birthday, Bits & Bobs and A Big Sigh.

Published 27/03/2012 by Amy

Today is my mum’s birthday so we are all at home enjoying a quiet family day. Later this evening we’ll be popping out for a meal, a rare occasional for us, we hardly ever eat out. Dad has been talking about looking forward to eating steak for the entire weekend :) Mum loved her presents and cards and eggs for breakfast (blehk) now, mum and dad are putting up the remainder of the double glazing panels around the house while I sit at my desk, replying to emails, blogging and listening to the awesome Hunger Games audio book on my daisy reader.

Last night I spent ages trying to track down a series of books I’ve been waiting to read for ages, after awhile I had to resign myself to the fact that I won’t be able to read them and I’ll just have to listen to all the reviews on youtube and read them on my friends book blogs, not quite the same but.. when you’re visually impaired, there are a lot of situations like this in life, where you have to just grit your teeth and bare the fact that the world is not made for you, and it sucks but it goes on. PLUS things always seem worse at night. Today they seem better, after chatting with my parents about how infuriating it is that it’s 2012 and there are still books I can’t access we’ve come up with a plan.
We don’t know if it’s going to work out or how long it will take, but if it works I’ll let you know what it’s all about, something should be arriving with my name on it next week and we’ll see if it’s plausible but I’m excited at the thought of having a semi solution, after being so down about it yesterday.

Also, as I’ve officially moved in to my new room now I can put some pictures up, it’s not as show room tidy as it was on the first night, it’s definitely got that lived in look and feel to it now with my slippers and throw heaped on the floor and a bin half full, but I’m very happy and I’ve been sleeping much better. This room is so huge! it’s probably the biggest in the house, and you know what that means, more space = more space to lose things in. I have some pictures/photos I still need to put up on the walls and I have a couple of wall craft projects I can get started on now so looking forward to that!

Enjoy the sunshine! doing anything special for Easter?

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PIP – How Will It Affect You?

Published 24/03/2012 by Amy

What Is It?

PIP or Personal Independent Payment is the new DLA or Disability Living Allowance. It will come into being in April 2013 with a select group to test it out (and to prove that yes, obviously this will save the UK millions to get us out of debt but won’t really leave the half a million blind residence better off with their living standards, or covering their basic needs like, paying rent and feeding themselves, providing carers, aids and equipment, all the stuff able bodied people, who are writing these forms, planning interviews to spy the last few fakers and getting things like this through parliament, take for granted. In June 2013 all new and receiving claimants for DLA will be sent a letter inviting them to claim for the new PIP because DLA will be dissolved and payments will stop. In October 2013 a major reassessment will be done for old and new claimants and finally in January 2014 a full assessment as part of a rolling schedule using random selection.
You can read the criteria for PIP as it stands right now, it is a guideline and under further development but I recommend reading it and seeing how you score up, it will let you know what to expect at the face-to-face interviews. DWP are currently inviting people’s feedback if you are disabled, please, please let your voice be heard we have to work with these people so let’s try and make this at least bareable we, not they will be living with the choices made.

How will it work?

PIP is split into ‘daily living’ and ‘mobility’. You need to score 8 points to meet the standard rate and 12 points to meet the enhanced rate. Note that you need to score points for each component and not an overall score and the questions asked are over 11 fields that are based on your activity and mobility and not on what your current health is or what the nature of your disability is, yeah, that really makes logical sense in a disability claim. This new criteria seems to deal mostly with upper body strength and cognitive development, which doesn’t really affect a typical blind or deaf person in day to day living scenario, we may be slow when it comes to dressing, washing, cooking and cleaning, but we usually have a good range of physical mobility, we can move about, we just can’t see or hear where we are moving about too, which is why it’s unlikely that you will score 8 points for the standard rate or 12 points for the enhanced rate for the ‘daily living’ component. However, there is a glimmer of hope for those who use a cane or an assistance dog, you automatically score  8 points for an unfamiliar journey and 15 points for a familiar journey. I think the majority of blind cases will receive nothing from the daily living component but thankfully will receive at least minimum for mobility if not enhanced for mobility. And worryingly I don’t think the deaf community will make the standard rate let alone enhanced rate for either component, unless deafness or blindness is combined with another severe disability, just being blind or deaf on it’s own is minor and not worth it according to the new scheme. In a case study available online it states in black and white that learning braille or being a braillist goes against you in the new claim and questions whether you should try to make yourself as independent as you can because it won’t actually help.

Quick Facts      Full list of FAQs

  • Only people of working age (16-64) can claim PIP.
  • If you have received an indefinite period award of DLA this does not automatically mean you will receive PIP at any rate, standard or enhanced.
  • PIP may be more or less than their DLA or not awarded at all. 
  • Both PIP rates are still as yet undecided.
  • If you are of working age and currently receive DLA you will not have to wait the three month qualifying ‘test period’ but will have to fulfil the nine month prospective test period.
  • Entitlement will depend on your ability to carry out day to day activities and not on your health condition or what disability you have.
  • DLA is not automatically switched to PIP you will be invited to claim by letter.
  • Unless terminally ill (expected to die in the next 6-9 months) nothing is automatic or immediate.
  • DLA was focussed on disability and how it effected day to day life. PIP is more about cognitive ability and mental health.
  • There is no guarantee you will be able to keep your Blue Badge if you have received one whilst on DLA ‘but our intentions are to maintain arrangements where possible’.


Daily Living Componant

  • Planning and buying food
  • Preparing and cooking food
  • Feeding and drinking (taking nutrition)
  • Managing medicine and monitoring health conditions
  • Managing prescribed treatment other than medication
  • Washing (bathing) and grooming
  • Toileting and managing incontinence
  • Dressing and undressing
  • Communicating with others

Mobility Componant

  • Planning and following a journey
  • Moving around


Rumours V’s Promised Facts.

In and out then forget you?
If you’ve ever been in this position before you know how laughable these face to face interviews have been in the past, with the interviewer’s clearly having no medical background, care, interest or is numerous cases not native English speakers. According to the myth buster sheet right at the end of the PIP FAQs page they have tried to relay our fears by putting in black and white for all to see that they are working with disabled people and their organisations to get feedback and help to develop this new scheme. And accessors and decision makers will be given special training and guidance to carry out their roles and draw on special support where needed. It sounds like for once they are actually trying to help, that or it’s a really elaborate disguise just to grab a few pennies back.

In the past you’ve popped along to an interview and you’re in and out in less than hour and then you don’t hear from them for maybe another three months till you fill out another unrelated generic form or you’re called up for another check up interview, this time they are trying to be on the ball and follow through rather than just whizzing you through and forgetting about you and then calling you up after a year. If you are a successful claimant, you will be followed over a period of a year which is reassuring the they won’t just dump you after the initial interview as long as the promised support is forthcoming and hopefully a bond will be built between the claimant and the decision maker, it would be nice to see the same person over and over, they get to know you and your difficulties and a trust and understanding can be built up. We are as untrusting of you as you are of us, you think we are lazy money grabbers, we think you don’t care or understand and forget us as soon as the office closes. I’m hoping that the new PIP will at least go some way into improving understanding and dealing with us as people and not merely stats.

I’ll lose everything?
ESA and JSA Employment Support Allowance and Job Seakers Allowance are not part of DLA and will not be replaced by PIP they are completely separate benefits and will not be affected. Also like DLA you can receive PIP if you are employed or unemployed.
However, PIP may affect your eligibility for other benefits. PIP is a non-means-tested and non taxable benefit.

65 cut of point?
If you are over 65 then no you’re unlikely to fit the eligibility criteria. However, if you’ve been in receipt of DLA/PIP before you are 65 you will continue to receive it as long as you continue to fit the eligibility criteria.

Part two will be a synopsis of how I feel about the changes from DLA to PIP probably in video form, coming soon.

Movin’ Right Along

Published 21/03/2012 by Amy

The Muppets version obviously.
I’m moving rooms so the whole house well, it feels like the whole house, is ‘in a transit mess’. I plan on taking new room tour pics when I have everything where I want it. Today I’ve made a good dent in my dvd and book organisation area, although the four shelve bookcase is by no means alphabetised but at least they are all on there and no longer in piles on the floor awaiting a forgetful moment and a bare foot. I had no idea I had so many series dvd box sets, it’s really obvious that I’m a medical drama addict with ER, Dr Quinn Medicine Woman, Greys Anatomy, Silent Witness and Body of Proof. A treky with Star Trek Voyager Box sets and ‘British Dysfunctional Familes’ with 2 Point 4 Children and My Family. My favourite shelf, (the top one) is reserved for my nostalgia mood with series like One Tree Hill, My So Called Life, F.r.i.e.n.d.s and growing, Heart Break High. Although I watched Roswell and Dawsons Creek I did manage to refrain from buying the dvd box sets, they currently sit contentedly on my Amazon wishlist. I’ve never seen Twin Peaks and I keep being nudged to get the DVDs because it’s a must see. I have The Virgin Suicides and Picnic at Hanging Rock which I love so I have no excuse or reason why I have never seen Twin Peaks except.. maybe the BBC or ITV never aired it here?

I need to get back to the books, my DiscWorld audio cd’s are being buried under The Forest House and The Fault In Our Stars. So, I’ll leave you with a pretty instagram pic I snapped of some small Hunger Games badges I bought from Estsy.

Sunday Reading List

Published 18/03/2012 by Amy



I’ve already started When Heaven Weeps by Ted Dekker but I’m no where near finished I got distracted by making my mum a Mother’s Day cake :D . It was a good distraction. I recently watched Picnic at Hanging Rock (I bought the deluxe 3 disk edition from Amazon with the original, directors cut. and lots of bonus features!!!) I’d never read the book by Joan Lindsay but the film by Peter Weir was amazing so I’m anxious to see what was left out or changed all together, it’s completely backwards for me to watch a film before the book so I’m ambivalent about it now. I hadn’t even heard of it till last week so yeah.. I know.. don’t hate me. It was recommended by a friend after having a long conversation about how obsessed we still are about The Virgin Suicides.

What are you planning to read this week?

- Amy

Book Review: Heaven’s Wager by Ted Dekker

Published 17/03/2012 by Amy

Blurb:The sudden death of his wife and son are bad enough, but when the company he works for steals his   idea, Kent Anthony begins to consider a plan for revenge.

Rating: 5/5

Review:
Heaven’s Wager by Ted Dekker, book 1 of the Martyr Song series or Heaven series is brilliant and did not disappoint me. This is the third series of his I have dived into and loved every minute, they just keep getting better and better.
The story focuses on one mans epic self finding journey. Kent who’s years of hard work and study are about to pay off, big time. And the life he’s always dreamed of for himself and his family will be life changing, and that’s an understatement, although for better or worse are relative terms. Kents journey take him on twists and turns, losses and gains, it’s a page turner, suspence in every chapter, is this all just some game played in the arena of life, is Kent in control or is he being pulled and pushed to do things by unseen forces? It’s brilliantly written, witty, thought provoking and we all enjoy when the baddies get their comeuppance. It’s about going after the things you think you want, expecting the things you rightly deserve at any cost and ultimately Kent finds the real goal was never factored in to his carefully articulated plan at all.

The characters are interesting and engaging, even the baddies are well rounded and not one dimentional. It takes you to ares in our own consciousness we try to avoid, confuses you, delights you and surprises you. It’s well paced, at under 400 pages you can go through the book in a few hours but I think you’d appreciate it more if you stagger it. I had to make myself take breaks to think about the story and relish it, making it last about 10-11 hours over a couple of days. i’ll definately be rereading this and carrying on with the series.
It’s exciting to read all the way through with no lows or feeling zones of bordem,  it’s Ted Dekker’s usual creative, imaginative style, some have said it’s a modern day book of Job with the obvious difference being Job was always faithful to God and Kent is anti religion. Grisham style suspense, no slow windups which I like, it just punches through it all but at a followable pace.

It’s very hard not to fill this review with spoilery spoilers, I highly recommend this author and this series, it doesn’t matter if you are a Christian or not because I think you will get something out of it, but if you are, you’ll get even more out of it. There are very few things in this book and the style that bug me a little and that’s the repetitive use of description, i,e ‘pinhead cop’ ‘pineapple grin’ and when Helen, Kent’s mother-in-law goes over board with the Christian message and comes across a bit condescending to Kent but I totally love it when she does it to Bill the paster, who’s more into his own doctrine than actually experiencing his creators love, and that is a global thing in many Christian communities, I’ve experienced it myself. I understand that some people are just like that, they are so filled with passion and wanting to share the love and message but even being a believer myself I cringe a little at the OTT of that attitude sometimes.
I have no problem being that bubbly and passionate with other believers but when you know someone doesn’t share it, it’s more than a little insensitive and it’s probably the big reason we are so distrusted today. Being a Christian isn’t about big shows and preaching equality while thinking yourself very important, you can pray quietly for them for years and it might work out better than making enemies.

Next books in the series.
When Heaven Weeps

Thunder of Heaven
The Marty’s Song

About the author. (wiki)
Ted Dekker is a New York Times best-selling author best known for mystery and thriller novels, though he has also made a name for himself among fantasy fans. Early in his career he wrote a number of books that would best be categorized as Religious thrillers. His later works are a mix of mainstream novels such as Thr3eObsessedSkinAdam, and BoneMan’s Daughters; and fantasy thrillers that metaphorically explore redemptive history. Best known among these is his mega-series, the Books of History Chronicles, which comprises the Circle series (Black,RedWhiteGreen), The Lost Books series (ChosenInfidelRenegadeChaosLunaticElyon), and the Paradise series (ShowdownSaint, andSinner), as well as several other books, including House (with fellow author, Frank Peretti).

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