Blind Experiences

All posts in the Blind Experiences category

Why it pays to browse (Audio Book Edition)

Published 08/05/2012 by Amy

Over at The Book Depository I was looking around, on the off chance for an interesting sale item, when I came across a curious thing I couldn’t quite believe.

All stacked in a row, in their pretty individual cases sat Ted Dekker’s Lost Books of History.
£24.69 Chosen
£14.15 Infidel
£12.34 Renegade
£21.60 Chaos
£14.19 Lunatic
£14.16 Elyon

If I were to buy the series individualy like that it would cost me £101.13.
So naturally I bundled them into my wishlist and sighed heavily. But guess what was hiding underneath, tucked away at the bottom of the page?

Ted Dekker’s The Lost Books Complete Series for £20.11. Yeah I pretty much did a triple, let alone a double take too. Ok, so you don’t get all the individual pretty cases to look good on the shelf, but lets face it. If you’re relying on audio books, what are the chances of you seeing too admire your colourful collection?

It really does pay to look around. Ebay is great for good condition used and sometimes new Terry Pratchette DiscWorld audio books. Amazon is great for picking up deals on contemporary audio books too. I’m not really keen on Audible having to pay a member fee for downloads that could get currupted and lost, it’s good for convenience but I like to have piece of mind with a cd in my hand that I can put on the computer & phone when I want.

Talking of Audible – they currently have. Mammoth May sale 40% off for members till Wednesday 16th May grab a bargain!

Apple Blunder

Published 07/05/2012 by Amy

Apple’s new IOS update 5.1.1 released today, left blind/vi users a little confused. The update not only turned VoiceOver off, it completely deleted the preferred settings, causing many of us to turn to our unupdated computers and iTunes to manually turn it back on or seek sighted assistance.

Not such a smart move, eh?

My Love Hate Relationship With Audio Books.

Published 26/04/2012 by Amy

I grew up with low vision, so I was taught how to sight read. In the last few years this has deteriorated and sight reading is becoming more and more of a struggle. I’ve always loved reading and I can’t bear the thought of giving it up, currently Amazon Kindle books are my default format, I can max up the font size and make it bold, but I know this won’t last forever. I’ve tried breaking myself into audio books over the years with hit and miss success. I started of with books I had already read, so I knew the story and could just get used to having a book read to me and not my own internal voice being in control.

The questions I ask myself when thinking of buying an Audio Book.

  1. Who is reading it?
  2. Can I stand to listen to that voice/accent for several hours?
  3. How much is it?
  4. CD or download?

It may seem trivial to some, just who reads the books, but to me the narrator is just as important as the cover art is for other people. I know people who prefer the American covers on books and go out of their way to order from Amazon.com just to get a specific cover. I don’t think it’s so much of a stretch to prefer a British English accent over an American English or Australian/New Zealand English accent. I know the money is in America so that is where the majority of the recording is done and that’s great if you are American, used to that accent and like it. But if you can’t stand some of the dialects you’re pretty much stuck! I’ve only found a handful of American narrators I can actually tolerate without getting a migraine. The American narraters I’ve come across and  enjoy so far, Lorelei King, Dana Delany, Khristine Hvam, Rob Lamont and Kevin King.
Audio Books are probably one of the most expensive formats to buy, because more people are involved with voice talent and securing the rights to record the book in the first place, the price of Audio Books, CD’s in particular are often between £15-60+ rather than the usual £5 Kindle book and £11 occasional hard back copy. It’s incredibly unfair but it’s a fact, which is another reason I hesitate when I know there is an ebook alternative.
When you’re paying that much money out on hours of listening, you want to make sure you can stand the voice that’s reading it to you. I always preview the narration before buying an Audio Book and even then sometimes it doesn’t work out. I wish it was as simple as buying British English narration from Amazon.co.uk and if I want American or Australian I just go to Amazon.com and the Australian alternative.

I have a trust issue with digital downloads, over the years we’ve had multiple hard drive crashes, corruption and lost so much stuff. I prefer buying CDs so I always have a hard copy, then if I want them on my iPhone or on the computer it’s an easy process, and it doesn’t involve me losing a digital copy and forgetting to make a hard copy it’s done for me. I can understand why Audio Book CDs are slightly more expensive than ebooks and paperbacks because you’re getting a physical thing, but when digital downloads are the same price I find it ridiculous and  just plain greedy.

I like to compare prices over the formats to get the best deal. I always check Amazon, Audible, Kobo, Ebooks and iTunes for every book I buy whether it’s Audio Book or an  ebook. Here’s how it typically works out. As you can see the ebooks are always cheaper but the synth voice is just as bad.

Above is the latest book I’ve been researching and thinking of getting, it’s a new author to me recommended by a blindie friend, as you can see I will have to use 2 months worth of credits to buy it in separate downloads from Audible, or £40 in one pop, not going to happen. Whereas.. I could get the same book, same narrator, both unabridged on iTunes as one download for 1/10 of the price. They are both digital, you don’t get a cd case with artwork so why the heck is Audible charging so much for the same book that’s provided to both Audible and iTunes by the parent company Amazon?
Another thing that bugs me when it comes to Audio Books is that even short books are more expensive than their paperback and ebook counterparts. Here’s a couple of examples of my favourite short books, around 3 – 4 hours long.
The Amazing Story of Adolphus Tips by Michael Morpurgo Audio CD Amazon £11.31
The Amazing Story of Adolphus Tips by Michael Morpurgo Audible download £8.99
The Amazing Story of Adolphus Tips by Michael Morpurgo Kindle ebook £2.99
Midget by Tim Bowler Audible download £12.29
Midget by Tim Bowler iTunes download £9.95
Now if you’re like me and a lot of other blindies out there, you are used to listening to things speeded up a little so often, it doesn’t take us 3 hours or 28 hours to read/listen to the standard running time. Another reason why I think Audio Books are over priced.

For a lot of us Audio Books are the only way to read or the preferred way, I don’t think we should be penalised for a basic right. I’m so disheartened with the voice talent provided. that I’m going through my 300+ ebook library and recording myself reading them using computer software, it’s going to take forever but if that’s what I have to do, while I still can, to be able to listen to a book then I’ll do it, but it shouldn’t be up to me. It should be up to the companies to provide decent voice talent in understandable and preferred accents. I have a Spanish friend who only buys Audio Books in English because the Spanish narrations are patronising and unbearable. This is just not good enough. There’s a gaping hole in the market for British English narraters, please, sighties, please fill the gap!

Now some of you may be saying, wait, doesn’t the RNIB provide a free talking book service with the Dairy Reader and Daisy Books? yes they do and I’ve been subscribing to it for almost 3 years but in that time I’ve found less than 10 books I actually liked and could listen to, My last batch was of some Margaret Mahy books I’ve been after for ages, they aren’t on Kindle and I had to give up within half an hour with all of them because they were recorded by the New Zealand branch of the RNIB. We have enough frustration in our daily lives without having to give up on books because we can’t bare the accent. Besides, what on earth do New Zealanders do to the English vowels?
In general I’ve found the talking service very limited, new books take ages to come out, and it’s mostly geared towards the very young or the elderly with genre’s of books and I’m constantly getting irritated with the catalogue not even having heard of the authors I want to read from.

Love Audio Books.
I love Audio Books because it still means that I can enjoy my favourite hobby and continue to learn things every day. They free you up, you can do all sorts of things around the house, even walk the dog while listening to the latest series. The flexibility of downloads and not limited to one place to get them from. The feeling like you can get the cover artwork with the cd versions.

Hate Audio Books.
Over priced, not enough acceptable narraters in preferred language, have to use a wifi connection to download books when I’d happily use up my contracted 3g connection data usage,

How do you read your books? If you read Audio Books who are your favourite authors and narraters?

A Literal Adventure.

Published 19/04/2012 by Amy

About three weeks ago, I stepped into my local library, something I hadn’t done for several years, the reason? There was a book I really wanted to read and it wasn’t currently available as an eBook and also I don’t spend £30 on an audio cd that I have no idea if I’ll enjoy the story or if it’s ruined by a poor choice narrator. Anywho.. my only option was to borrow the paperback version from my local library, which is so poorly stocked it had to actually order it in from another library and mum offered to read it to me in the evenings. A week after booking it I got to pick it up and my library is now offering a self serve and return station, kind of similar to the self serve stations at supermarkets, except these don’t talk or announce anything, or they may do but no one mentioned it when we needed help to scan my card barcode in to borrow the said book. We eventually got it sorted and took it home, the print was really tiny so I had no chance, in fact it looked just like blank pages to me. It must have been really tiny because even mum had to put on her glasses, which is a very rare occurrence. We didn’t even read the first page the entire three weeks of borrowed time.
Our fall back plan was to scan the paperback onto the computer and try these free ePub conversion sites that apparently let you upload pdf’s and convert them into various ebook formats such as .mobi for Kindle. Mum was already half way through doing another book for me so we didn’t get around to doing this one, we tried two different sites and it didn’t work, just used up lots of internet data and accomplished nothing. So, I guess I’m stuck with either paying out lots of money I don’t actually have to get my hands on an audio book I may or may not like, or I just don’t read the books I want to read while everyone else gets to read them and review them. Nice.

I’d like to find out if the self serve and returns station does have audio capacity, I know in America they have talking cash machines, which they are trying to do here, so why not library stations too? However, a talking book station still wouldn’t help me and my guide dog actually exit the library through the glass doors that you have to wave or press a button at to go through, although I imagine Ellie and myself are very comical in these situations, it does little for my self confidence and wanting to gain further independence. One step forward two steps back.

Also following some awesome new blindies on Twitter and this popped up today, I think it’s very interesting, so check it out.

Go for it.

Published 17/04/2012 by Amy

2012, I decided to push myself out of my limits, it’s April and I’ve barely tapped the bubble let alone pushed through it. After listening to a documentary on Youtube about Ben Underwood, who was blind but saw with sound, eco location. He would click his tongue and detect if anything was in front of him by the echos that bounced back, he was totally blind, yet didn’t use a cane or a dog, relied totally on his self taught eco location. I’d heard of this technique before, another American in another documentary, but the other guy I knew also used a white cane.

Ben has since died from cancer, which at the age of 2 caused him to have both eyes operated on and removed to save his life, but his memory and inspiration lives on. He didn’t consider himself handicapped in anyway, he played basketball, skated and rode his bike up and down the street. I’ve always wanted to be able to skateboard, nothing fancy, no ramps or rails, just stay on the board long enough to do a flip trick or something for my own enjoyment but I’ve let my anxiety take over and slow me down rather than hitting it head on and trusting myself in a familiar environment.

After the documentary I went back to watching skateboarding tutorial vidoes and I just went for it, I googled the best beginner boards, safety gear and helmets, and dove in. Ordering a helmet was the trickest thing because of my microcephaly I have smaller than average head circumference which means lots and lots of padding even in the smallest hat. I didn’t go for anythign flashy or expensive, I don’t think I tipped over £30-40 for a board, wrist guards and a helmet. I was going to upload a picture of my gear with this post, but unfortunately only the helmet and wrist guards have arrived, still waiting on the ‘monster’ skateboard.

So, instead I’ll leave you with some inspiration from the late Ben Underwood.

 

First Disability Network Meeting & Thoughts.

Published 16/04/2012 by Amy

Today I was invited along to a local Disability Network meeting. I hadn’t really heard or were aware of them so it was nice to go along and see what kind of things they discuss and what, if anything, I can get involved with to help out.

I was expecting a few more actual disabled people to be in the meeting, as it’s for their benefit and feedback on how we as a community can help and get things noticed by the Councils.

There were three disabled people myself included, I being the only blind person. The rest were made up of different agencies and charities.

The MP representative who I’m told usually attends these meetings, didn’t turn up to today. We were hoping to see him/her to address and stress once again, that it’s all well and good deeming to reply to the people who give you your power, but if you disrespect us by reply in an unaccessible format, you aren’t doing your job and clearly aren’t worthy of it.

However, despite that set back which I’m sure will be readdressed in two months time if they actually turn up! I did learn some valuable information regarding local services which I’ll happily share on here in the navigation on your right.

I’m very much interested in the See Hear Center provided by Living Options, which is hoping to raise some money for a bus scheme so it can go on the road and promote the service, at the moment it’s based in North Devon and they run a ‘Try before you buy’ service with aids for those with Visual Impairments and Deaf Impairments. Which is a fantastic idea because a lot of the aids and adaptations, particularly electronics, can be very expensive even though they can mean so much and change the world for a VI/Deaf individual. It’s also great news that they want to cover the whole of Devon, opening it up to more people and those who can’t trek all the way up to Barnstaple. Second hand equipment definitely appeals to me so I really want to check this place out.

The Living Options website is jam packed full of information so if you are disabled or live with someone who is disabled and you live in Devon it’s definitely worth checking out if you’ve not done so already.  

PENfriend Review

Published 13/12/2011 by Amy
The PENFriend is an audio labeling device that enables you to record you own voice onto the special various size and shape labels. You can pretty much stick them anywhere! The possibilities are literally endless, you can be creative, or just totally practical. I first heard about the PENFriend while I was routinely going through RNIBUK’s youtube channel. I was hooked. Such a small hand held device could provide me with all the information I needed via my own voice, without any sighted help? Get real. They did.
I’m quite fussy when it comes to the voices and accents I listen to. If it isn’t clear and easy so follow I zone out. So, the idea that I could use my own voice to record things rather than a synthesized voice or an accent I’m not used to hearing, was really appealing. Also the idea of being able to organize myself and be more independent is totally for the win. I’ve never been able to use general stationary ie.. diaries from let’s say general high street shops that sell stationary. In the last few years I’ve luckily had talking software on my mobile phone enabling me to use the calender and diary functions on there but to me, nothing beats a good old paper diary with ‘stick its’ and things making it pretty and tricky to keep closed. I’ve had a couple of large print diaries from the rnib shop and they are great but now with the PENFriend I can walk into any high street shop pick up a pocket size diary and I’m off.. just like the ‘sighted’ folk. Stick a label on every day so I know the day, date and year, then add extra stickers for different events. I feel compelled to quote that famous and loveable Meerkat, Aleksandr Orlov “Simples”.

The PENFriend looks pretty chunky when you get it out of the box and it does feel a bit unnatural when you first start using it. But I was surprised by how light weight it really feels, when I have it around my neck on the lanyard and tucked in my hoody pocket I don’t really notice it. It might take awhile to get used to holding and also getting the distance right so that your recordings aren’t crackly or fuzzy but I’ve had no real problems. When my recordings aren’t very clear I just do them again, and you don’t have to worry about wasting labels, you can record on top of previous recordings just press the record button and touch it to the label to start a new recording. The buttons are easy to find and you don’t have to push down hard which is good, on my Looky I have to press the buttons really hard to get a response and it bugs me. The volume buttons are particularly comfortable the slight angle makes them easier to distinguish and use. The most comfortable position I found holding the PENFriend was with my first 3 fingers and thumb and you can use it left handed or right handed in the same way, still a good grip and find the functions. I’m ambidextrous so it’s nice to have gadgets that accommodate for that.

I cannot recommend this piece of technology enough. In such a short space of time my life has been so much easier, less stressful and frustrating. I can get on with things when I’m home alone now, that truly is independence for me. Obviously you can’t use it for everything – I don’t recommend you taking it in the shower to find your shampoo and conditioner or body scrub, but for the majority of things it really does help. I made a short clip video of some of the uses I’ve put mine too. I have way more ideas and it’s going to be accompanying me on my local weekly shop to the supermarket, labeling things as they go into the trolley, packing stuff away at home will be a doddle!

It is a considered purchase at £60 with registered blind/partially sighted status knocking of vat and postage but I believe it’s worth it. Compared to the extensive list of other gadgets I’ve needed to help me live a normal day to day life, this is on the more affordable scale and you will really use it every day.
I love how intuitive it is, there are just four buttons nicely spaced out along the length of the pen, I was also very impressed by the instructions. No big manual that I’d have to wait for someone to go through with me, no CD I’d have to fire up the computer or Daisy Reader and listen to, just turn the PENFriend on and place on the 8 labels stuck to the cardboard inlay. I’d recommend you watching the RNIB’s demo video/tutorial first, which is what I did before and after I bought it, then I listened to the instructions that came with it at least twice before I started labeling and recording. It was so easy, I was home alone and I managed to do it all by myself, from opening the package, finding the on button and working it! it comes with batteries so it’s ready to go straight out of the box. I really like the box/container it comes in it’s compact and durable, also a handy place to store your extra labels, and I recommend stocking up on those! I opted to by Pack C along with the PENFriend and I’m glad I did. The provided lanyard is also helpful, but it does mean that I now have 3 things around my neck, my doro phone, my braillepen12 and now my penfriend :) It also comes provided with a USB lead so that you can back up your recordings on to your computer, and also transfer computer files such as MP3′s and audio books on to the 1GB PENFriend memory.

I give it a 5 out of 5

Well done RNIB and CNIB

For more information on the PENFriend check it out on the rnib website or check out their youtube channel.
www.rnib.org.uk/shop
www.youtube.com/rnibuk

Guide Dog Vs White Cane part 1

Published 22/10/2011 by Amy

Before I begin this post I would just like to point out that this isn’t going to be an explanation of the different uses and techniques used in using either of these guiding methods for Blind and Visually Impaired people. It is merely my experience and opinions expressed while using each method and the reasons for switching from a white cane to a guide dog. The techniques and differences (that I found or experienced) will be in another post.

I vaguely remember being told that before you even start thinking about putting yourself on the Guide Dog waiting list and that process you need to be a white cane user, white being long and not just a symbol cane user, which is something entirely different, as I will explain in my later post (part 2).

When I first trained with the long white cane, it struck me at how amazing independence really felt, something so small made such a huge difference to me and my personality and everyone sensed it. My arm ached for the first week, because it wasn’t a natural motion that I had been using, but the practice paid off and I was soon bombing down the street full of confidence, and even when I did come into contact with something I wasn’t phased. I just swept the cane a little further out and got past it. It’s a good first step when transferring trust from yourself, or a family member to something else, and I can understand why you need this training or skill before progressing onto a guide dog. I preferred the sweeping motion to the tapping motion, so I tended to stay on level terrain and not do short cuts across grass which I found to be tricky with the roller ball. The main difference I found between the cane and a dog is that the cane will find obstacles, and the dog will avoid them. I have to be honest and say that I prefer using the cane when going up and down steps, particularly up. But that is just me and my 20 something years of irrational fear of concrete steps, and stairs in general.

The cane like the dog will only protect you from the waist down so you will still find that hanging baskets, branches, plastic offer banners on supermarket shelves wills still attack you and the cane and dog wont avoid them. Also.. well at least in my case, my guide dog avoids drains but the canes are very musical over them. Mind you don’t get your cane stuck in one of those open grate type drains though!! avoid those at all costs.

As I said, guide dogs avoid obstacles instead of crashing into them and negotiating around them. This saves time and even makes me less nervous and stressed when I go outside. I trust Ellie and and I know she will avoid things and it’s really only hedges, cars and bins that I have to remind her off. If she gets me to close and I feel it – I just make her take me back and say WATCH you only have to do it once with her it’s great. Again Ellie, like the cane doesn’t inform you of over hanging branches or baskets so I wear my sunglasses every time I leave the house for eye protection, but I would wear them anyway because I find the outside light to be too bright for my eyes and I am severally susceptible to migraines. I’m thinking of getting the iGlasses from the RNIB which act as a secondary guiding method with use with canes or dogs I’ve also explained more about it here.
Ellie has opened my world up, you get to know locals with guide dogs or pat dogs so it opens the community up which is nice, which the cane didn’t really do. If anything people jump and run out the way instead of greeting you, people always want to talk to your dog and pat them and make conversation with you, they didn’t really do that with the cane. So that social interaction helped with my confidence and got me talking and opening up to people instead of trying to be invisible.
I wouldn’t go back to a cane now, but I’m glad I experienced that and if it comes to a point in my life where caring for a dog is too much for me in my dotage I’m sure I’ll go back to it, but not right now. A companion and best friend beats a metal white stick anyway. The cane doesn’t warm my feet up or wake me up for hugs.

Making the decision to switch from being a white cane user to a guide dog owner was not an easy one. It took several months, a few meetings and a lot of family discussion. It didn’t just effect me, it effected the whole family unit. Being a guide dog owner does mean that you are 100% entirely responsible for your guide dog – they really are working dogs first, pets second. The fact that the Guide Dogs Charity pay for everything vet and food related also helped in the decision making, as we all know how expensive human food and health can be, animals are a higher level altogether. There were other reasons for me focusing on getting a guide dog and moving on from the cane. The main one being, I am young and I could work if heavily supervised and trained up (which is why I’m amongst the many unemployed, regardless of ability or disability). I needed to get out, leave my comfort zone, meet people, build confidence, explore voluntary work before I could even contemplate looking for paid employment. The cane was an easy excuse not to leave the house unless I had too, it wasn’t a big responsibility, it didn’t need walking or feeding, it was just there when I couldn’t stand the house anymore, which isn’t very often. A dog meant having to go out twice if not more a day, it meant having another living thing there with me when I was scared at a road side or waiting for a bus, it gave me confidence to go down to the local shop and get bread or whatever. Having a guide dog made me go out and explore the world around me, people around town got to know us and go out of their way to say Hello or help us across the road if it’s particularly busy and too noisy to tell if it’s safe. Ellie gave me trust and I learnt to trust her much faster than any one else outside of the family, or even myself. Ellie gives me the chance to live some normality, to be as independent as I can at the moment, to have a constant friend, to have a listening ear without a judgmental answer, although sometimes I think her barks are very sarcastic!

If I was asked to give advice for up and coming guide dog owners it would be that you don’t have to be a dog person to begin with. I wasn’t. I was always a cat person and I was terrified of dogs jumping up on me but after the first meeting with Ellie that was it, I was set. The training helped boost my trust and the bond. I can’t imagine life without a guide dog now. I’ve accomplished so much in the last 15 months and no one can take that away from me. I wouldn’t have tried half of the stuff I have or been able to have helped or reached out to others without her. Ellie is a pet, but she’s a working dog first and she knows it. Loves to work and work for me and all guide dogs want to please their owners. The Guide Dogs team are always there just a phone call away, they wont leave you. They are with you every step of the way, vets are great, not means tested and never will be.

If you are new to the white cane, stick with it get yourself out of your comfort zone and you’ll never look back, seriously. It worked for me! don’t focus on it making you stick out from the crowd like I did at first and that held me back but focus on the fact it’s making you like everyone else, independent. People will soon forget that there’s an obvious difference with you but you have to be the first to forget it’s there, it will be second nature in no time.

Part two will include pictures, techniques, experience and reasons for the Symbol cane, White Cane and Guide Dog. Stay tuned..

Blind Insight: Organisation.

Published 05/10/2011 by Amy
I did a brief video about this on my youtube channel but as usual, I always have more to say and this time I can add some pictures to visualize what I am actually talking about.

The bathroom:

photo(26)  photo(25)

I’m not a morning person, so organisation in the morning is a really big thing, if something is out of place it can disorientate me so much, it’s unbelievable. It really can make the difference of a good day or a bad day, no one likes to start they day of moody because they can’t find something that’s been misplaced by so much as 30cms.

I’m lucky in a way that the majority of products I use are very distinguishable from each other. I generally use my Philosophy shampoo which is a huge bottle! and easy to find amongst thinner, taller bottles. Most of their products are in similar bottle sizes though so when using the brand for various things it can be a little bit tricky. My Philosophy facial wash is the same size as the shampoo bottle, so it’s a good job, one is by my toothbrush area and the other is in the shower cubical itself. For the last 3 months I’ve been dying my hair so I’m currently going through Pantene’s colour protect, which also luckily is distinguishable from my Pantene conditioner. The lid for the shampoo is located at the top, the conditioner at the bottom, not only a cool aesthetic design, but incredibly helpful too.


As I said in my video, the bathroom is really the only place where I go to the extreme of organizing things. With three of us living in the house, it’s hard to have areas that you can control that wont get messed up.

There are things you can do to help you get organized such as audible labels, for cans and jars, and braille labeling systems where you can braille out your own labels for cupboards or whatever you like really. I’ve also used bright orange gel dots on a measuring jug before I had my talking kitchen scales and talking measuring jug.

My room has never really been very tidy because I live in it a lot of the time, so things are in general use and I’m basically just a messy person and had the kindest parents who pick up after me even now. I have been working on my room though, I tend to do it it bits, an area a day, something like that. It’s a lot better than it used to be, my room is smaller since moving to the back of the house so it’s easier to maintain. I love little tidy boxes/drawers and I will sound really geeky here but I love choosing what to put in each drawer and stuff, so those are really fun and cheap to pick up. I especially love the ones you can decorate yourself. I picked up a glossy white set of 9 drawers from QVC during a craft show and I really wish I had got more than one set, they are so useful.

Exploding Head Syndrome

Published 29/09/2011 by Amy
Exploding Head Syndrome, Wikipedia describes it as a parasomnia condition that leaves the sufferer experiencing episodes of flashing light and explosions. People have also described hearing ringing, screams, static, voices and gunshots. 

I made a five minute video on the basics of EHS and a little about the experience I’ve had with it but I wanted to elaborate on it a little more here. 



I’ve experienced flashes of light that’s so bright it leaves you dazed with dots in your eyes and disorientates you. Mostly I hear voices, screams, static and gunshots. The voices usually start around 11pm and can go on till 5 in the morning. It sounds like someone is in the next room talking quietly so you can’t hear what they are saying exactly or even if it’s a guy or a girl talking, singing, even English or another language. It’s not distinguishable but it is there. Sometimes I’ve wondered if I’ve somehow slipped into another dimension, another world that I’ve somehow managed to slip through and sense other world conversations and spells. I find myself straining to hear what’s being said because you can’t ignore it or shut it out. You can’t sleep with it going on. The static annoys me more than voices, it’s as if it’s so silent that the silence is static. The silence is void of silence. 

This used to scare me as a child, especially the gun shots and screaming but it’s just something you have to get used to, you are not alone and even though there is no cure except a distraction. It’s nice to know that it is a medical condition and that you are not clinically insane. Which I have often wondered myself. 

The other thing I mention in my video, I’m not sure of the name but my ROVI told me after I explained it, that both are common in Visually Impaired people. The second thing is distorted images the brain tries to make sense of and can’t and leads your imagination to make things appear sinister. A 3 seat light coloured sofa in the early morning sun with a red throw over it can appear to be three headless humans greeting you for breakfast. 

No amount of getting close, if you’re not paralysed by fear or shock, or double takes, will help your brain find the information your eyes are incapable of seeing. As I got older I could control my imagination and had the ability to guess and reassure myself what something was or likely to be. As a child I did not and this can be an entirely other level to the usual childhood monsters under the bed. Being a medical show junky just makes this condition worse and listening to 9/11 documentaries has probably scarred me even more than a sighted person who can see the horrors, the imagination is a far more disturbing place
Follow

Get every new post delivered to your Inbox.

Join 97 other followers